robelinda2
Well-known member
Well, where to start. Belinda and I have been going through the toughest time over the past 4 weeks, and it gets worse from here. My 8 week old son Tom recently got diagnosed with a rare liver disorder calld Biliary Atresia, its just awful. We have been in the Children's hospital here in Melbourne for ages it seems, and today is the big day , right now Tom is in surgery having a major operation to correct the problem. Its a life threatening disorder and the surgery only has a 40% success rate, which is very hard to take. They have to stretch part of the small intestines up to the liver so the bile can flow. If it fails he will need a liver transplant, and we are hoping that is not needed as its quite rare to get one. Its seriously difficult to take as he is so lovely and has been a great kid for his first 8 weeks! He smiles all the time at me, we have a great time. Not much we can do but wait and hope for the best. Wish us luck!!