Thanks so much guys for thinking of us, it means a lot. its been a really tough time lately, its been just over 4 weeks since the liver operation, we have to wait 8 weeks to know 100% for sure if its worked, but unfortunately the signs aren't that great so far. He hasnt gotten any whiter, and his poos havent darkened, and he hasnt been gaining weight, so we are most worried. All these signs point to the operation having failed, so we take him to the hospital tomorrow actually for another stay, the local doctor yesterday said there should be things happening by now and its unlikely to improve heaps in the next few weeks, as it takes time to improve gradually, but hey of course you never know. His liver is quite swollen too which is a definite sign the bile isnt getting out. So i'm sorry i dont have much positive to report, apart from the fact he is acting all happy and being pretty great in general.
rob, dude, ive already replied here but ever since i read your response ive been racking my brain trying to think of any which way i can help. obviously im not "qualified" but if you think of anything you guys need please lemme know.
Im sorry things arent looking rosier...Maybe mention to your doctor the offer to have someone at mattel Childrens Hospital @ UCLA look at the labs and such?