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fogman

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Joined
Dec 27, 2004
Messages
12,070
Location
ontario
Rob,

From what I can tell from that picture, he's a fighter!
Follow his lead and don't accept anything less!
 

Shnook

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Joined
Oct 6, 2002
Messages
259
Sending postive healing thoughts your way Rob. You've got a tough little fighter there.
 

unclerico

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Joined
Aug 7, 2007
Messages
371
Location
Mesa, AZ
OK Rob

I have walked in your shoes. Casey went code blue twice and they brought him back to life. I ve waited in the waiting room for 8 surgerys by the time he was 6.

Here is what I can tell you. Do not see ghosts..... deal with the present and dont project anything that isnt positive. You are his advocate and keep an eye on things. You have to be strong as hard as it is.......

Now all I can do is offer to answer any questions that arise out of this via pm. I can also offer the services of Mattel Childrens Hospital at UCLA. I am once again on the board of directors there. I was the founding member and have donated my time to them for 14 years 8 as a board member. THe Ball family has huge juice there and it is yours. If your doctors want to run some film or lab stuf by the guys there or if the need arises I can arrange for him to come here. I sure that he has great treatment but a backup never hurts.

THe best wishes I can send are comin at you and your family



Don't You just love this forum. Not just support for EBMM, but even real life things. This is just a great forum, I just cannot even believe it. Great help BP. And Rob, good luck to you and your family.
 

Eilif

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Joined
Sep 9, 2004
Messages
1,131
Location
Mililani, Hawaii
Rob,

Like many others, I am praying for you, your wife, and your little boy.

But is there something else we can do for you? Someone mentioned financial assistance...do you need any help in that area? If so, perhaps we could all pitch in something. Many little amounts can add up to a large amount.

If there is anything at all we can do to help, don't be shy. Maybe I'm being audacious in speaking for everyone here in this manner, but I do not believe I am the only one here who feels this way.

And if there isn't, you know we're with you in spirit.
 

robelinda2

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Nov 10, 2005
Messages
9,330
Location
Diamond Creek, VIC, Australia- at Rancho Alberto
We are both still working , part time, so one of us is always at Tom's side, finances are no problem, especially as i'm still buying more balls in my boredom!!!!! The staff are great here at the hospital, i'm sure if we had to work at the same time he would be fine and well cared for. Hardly any of the other kids here have their parents stay with them, i feel sad for them when they cry out for the parents. I've got my Dargie Silo Special with me and a whole lot of guitar dvd's to watch on my laptop, gotta do something while i'm sitting on that chair all day!
 

Big Poppa

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Joined
Feb 9, 2005
Messages
18,598
Location
Coachella & SLO, California
When are we going to talk about how hoorible those chairs are....at least in the states....
We saw the same thing when casey was ill...sick babies and the parents were never there

really sad
 

luke69

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Joined
May 9, 2005
Messages
149
Location
france
dear Rob

i'm with you all the best wishes is possible
I lived same things with twins baby..........very very bad
you and Linda have a big big courage
i can't make a thing for you
but i'm with you every time
no good english but it's come from my heart

Jean Marc for France
 

Smellybum

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Joined
Dec 11, 2004
Messages
3,411
Location
Evanton, United Kingdom
When are we going to talk about how hoorible those chairs are....at least in the states....

I don't know if it's the same chairs in Scotland but they we have the same type of chairs you see in retirement homes - big backed and impossible to sleep comfortably in, I had 3 nights in one and then couldn't walk, they have the most rigid L shape and when you relax your body it's almost like your ass turns into a triangle!!! - So now you can sit on a scottish chair whilst playing your scottish guitar poppa!

There must be some S&M Parlour where the design them, and again the coffee in hospitals, well it's not exactly coffee more of a homage!
 

Katana6506

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Joined
Jun 19, 2005
Messages
465
Location
Midwest USA
Rob, just popping in to say that you're all in my thoughts-wishing you all the best. Here's to your son's recovery.
 
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leftyguitarblue

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Jun 29, 2007
Messages
4,053
Location
Planet Erf
whats worse than the chairs is the lack of variety in the food. McDonalds or McDonalds, they are the main sponsor of the hospital. At least maccas is a whole lot better than 15 years ago.

I find that strange that the food that is the worst for you is in a hospital. Strange, but convenient at the same time. because when you get sick, Bamm, there is a hospital right there.

that would be like having a Pub in an Alcoholics Anonymous facility.
 

Musicman Nut

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Aug 20, 2003
Messages
1,456
Location
California
Well, where to start. Belinda and I have been going through the toughest time over the past 4 weeks, and it gets worse from here. My 8 week old son Tom recently got diagnosed with a rare liver disorder calld Biliary Atresia, its just awful. We have been in the Children's hospital here in Melbourne for ages it seems, and today is the big day , right now Tom is in surgery having a major operation to correct the problem. Its a life threatening disorder and the surgery only has a 40% success rate, which is very hard to take. They have to stretch part of the small intestines up to the liver so the bile can flow. If it fails he will need a liver transplant, and we are hoping that is not needed as its quite rare to get one. Its seriously difficult to take as he is so lovely and has been a great kid for his first 8 weeks! He smiles all the time at me, we have a great time. Not much we can do but wait and hope for the best. Wish us luck!!

Man what a story, Very Touching, I have Kids so I can Imagine your Pain. My Prayers are with you and God will Take care of him. Hang in There. DJ
 

Freddels

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Apr 23, 2006
Messages
875
Location
Near Wistah
Whew, I just read through all of this and am sitting here with tears. I hate to hear about children being sick or hurt. We have 3 boys and know what it's like to be a parent. Your whole outlook on life changes once you have children.

When my second son was a week old he was in the hospital with a respiratory virus (RSV). He was there for a week with IV's being stuck in him everywhere (even his head). My employer (PwC) at the time didn't care and I had to work all day and then I'd spend the night at the hospital and go back to work in the morning. So I can see how some kids won't have parents there with them. Many employers here in the states are like that. My wife would stay at the hospital most of the day and night too. Luckily, her mother was visiting and was able to watch our other son. It's tough seeing babies so helpless.

Our thoughts are with you, your wife and especially your son.

Fred
 

robelinda2

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Nov 10, 2005
Messages
9,330
Location
Diamond Creek, VIC, Australia- at Rancho Alberto
Man i feel bad that this thread is still getting attention, with all the positive stuff going on around it, like the Desert Bash etc, the last thing i really want is to make everyone sad. I also feel bad for those who have read all 23 pages in one go, my heart goes out to you!!!!

Slight bit of good news, I got a smile from Tom last night, first one in about 9 days, it was a tough smile to get through, will all the tubes in place, so inside him i know he's a little bit happy. We seem to have a thing going where the first time he sees me after a sleep or after ive been out, the first thing he does when he looks at me is give me a little smile, almost every time!
 
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Jimmyb

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Dec 17, 2005
Messages
2,562
Location
Cheshire, UK
Rob,

You shouldn't feel bad.

I think this thread embodies everything that is great about this forum. I've never met anyone on here, but sometimes I feel a real bond with the people that I talk to on here. There are disagreements and people get hot under the collar, but when you look at the compassion and genuine concern that is reflected in the posts here on this thread, it helps to maintain a sense of balance.

I think it's been getting attention because we do really care and hope that Tom is pulling through. It gives a feeling of hapness to read that he smiles at you when he wakes up and it causes sorrow when we read that he's not doing so good.

Most of us are fortunate enough never to have had to experience what you're going through, but I certainly don't think I would handle it as well as you have. Even through all of the bad times, you've maintained a great positive attitude and have been a great forum contributor. I really admire your ability to keep it together.

As far as I'm concerned (but I don't pay the bills here) keep posting away. All of us want to know how Tom is getting on and we all send our best wishes and prayers for you, Belinda and Tom.

I'll echo what others have said and offer you any help that I can.
 

Big Poppa

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Feb 9, 2005
Messages
18,598
Location
Coachella & SLO, California
ROb

DOnt be silly....

We are here as much as you need and as little as you need...whatever role we can play that helps you and your family...i its money fine if its escape great

Your situation makes the aprty trivial and let me tell you I have a little something up my sleeve......
 
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